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It is important to understand the aforementioned
medical literature and its limitations when counseling families with these diagnoses.The first step is to
meet, listen, and understand what the family knows
of the condition and is looking for in order to determine how best to approach them with an appropriate use of the literature.
It is important to understand the aforementioned
medical literature and its limitations when counseling families with these diagnoses. The first step is to
meet, listen, and understand what the family knows
of the condition and is looking for in order to determine how best to approach them with an appropriate use of the literature. As our case examples show,
there are families that come in with a belief and
acceptance that this is not an acceptable condition
for their child and they wish to terminate to the family that comes in determined, perhaps defensive
about discrimination, about wanting “everything
done” for their infant. While it could be argued that
informed consent requires each family to hear about
every option, it would be harmful to each of these
families to have to hear everything about options they have no interest in
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